life news ^ | Steven Ertelt
HHS Secretary Kathleen Sebelius is refusing to intervene in a case of a young
girl who needs a lung transplant as doctors have only given her weeks to live.
From a local news report:
The Newtown Square girl has been hospitalized for three months with end-stage
cystic fibrosis.
Sarah is not giving up hope. She wants to be a singer, but needs a lung
transplant to live. Her parents have been with her constantly while she waits at
The Children’s Hospital of Philadelphia.
“She worries that she’s dying, because she’s not — she’s a smart kid. And she
says to me, ‘Mommy, will I wake up tomorrow morning?’” said Janet Murnaghan.
Organ donation rules require adult lungs to be offered first to people over
the age of 12. Sarah’s parents say that’s not fair.
“Rules are meant to be broken. My child is not a statistic. She’s a person,”
said Janet.
Sebelius says she doesn’t want to intervene in the transplant case when other
sick children are dying, but Sarah’s family says hey want the policy changed for
all children awaiting a lung transplant, not just Sarah.
Sarah’s aunt Sharon Ruddock says older children should be eligible for adult
lungs because so few pediatric lungs are available.
She says that would add just 20 children to the 1,600 people on the adult
waiting list.
Sebelius has called for a review of transplant policies, but the Murnaghans
says Sarah doesn’t have time for that
Sarah’s parents have launched a public relations campaign to try to get the
rules changed and an online petition in support of Sarah has been created with
thousands of supporters.
Congressman Patrick Meehan stepped in and sent a letter to the Secretary of
Health and Human Services requesting that she address the tragic unfairness and
act to give Sarah a chance at life.
Meanwhile, members of Congress asked Sebelius during a congressional hearing
about Sarah’s case:
Health and Human Services Secretary Kathleen Sebelius rebuffed an appeal from
Rep. Lou Barletta, R-Pa., on behalf of a girl who needs a lung transplant but
can’t get one because of a federal regulation that prevents her from qualifying
for a transplant.
“Please, suspend the rules until we look at this policy,” Rep. Lou Barletta,
R-Pa., asked Sebelius during a House hearing Tuesday on behalf of Sarah
Murnaghan, a 10-year-old girl who needs a lung transplant. She can’t qualify for
an adult lung transplant until the age of 12, according to federal regulations,
but Sebelius has the authority to waive that rule on her behalf. The pediatric
lungs for which she qualifies aren’t available.
“I would suggest, sir, that, again, this is an incredibly agonizing situation
where someone lives and someone dies,” Sebelius replied. “The medical evidence
and the transplant doctors who are making the rule — and have had the rule in
place since 2005 making a delineation between pediatric and adult lungs, because
lungs are different than other organs — that it’s based on the survivability
[chances].”
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